Meet the Esbriet Ambassadors and hear their stories

If idiopathic pulmonary fibrosis (IPF) has affected you, you are not alone. The Esbriet Ambassadors and their families are living with IPF too. Meet the ambassadors and discover their stories in the videos and biographies below.

Who are the Esbriet Ambassadors?

The Esbriet Ambassadors are people who are sharing their life stories and treatment experiences, helping to raise awareness and understanding about IPF and Esbriet® (pirfenidone).

Pete’s Story

Hear how Pete found out his diagnosis, and how he works with his doctors to manage his IPF. 

Patient Support Services

Hear from other patients about the Esbriet support options that have helped them and their loved ones.

Janet’s Story

Find out why Janet and her doctor chose Esbriet to treat her IPF, and how she stayed motivated during treatment.

Gary’s Story

Hear how Gary started treatment and how he manages his side effects while on Esbriet.

 


Learn how Esbriet Ambassadors made their treatment decisions

Terril

Esbriet Ambassador
From: New Smyrna Beach, FL
Job: Retired (Nurse Practitioner)

"Knowing there was something I could do to treat IPF made the weight of the diagnosis a little easier to manage."

Jay

Esbriet Ambassador
From:
 Richmond, VA
Job: Retired (Family Care Practitioner/ Professor)

"I wasn't ready to acknowledge IPF's severity and my need for medication. I had to have been in denial. However, the following year, my test results showed another five percent drop in lung function, so I decided to revisit my treatment options. My doctor and I decided to start Esbriet® (pirfenidone)."

Dave

Esbriet Ambassador
From: Beaver Falls, PA
Job: Retired (School Psychologist)

"My pulmonologist pointed out to us that I'd been diagnosed early. That meant I could start treatment sooner rather than later. He gave me literature about treatments that may slow the progression of IPF. I took them home and my wife and I studied them. My pulmonologist and I agreed that Esbriet® (pirfenidone) might be a good choice for me."

 


Learn about ways to get support for your journey

John

Esbriet Ambassador
From: Hillsborough, NJ
Job: Consultant

"I started participating in a local support group where I'm able to talk with other people who have many of the same issues I have. And if I'm going through it, then others likely are too. Being able to listen and share has been incredibly helpful."

Frank

Esbriet Ambassador
From: Hampden, MA
Job: Retired (Mutual Life Agent)

"During the first 4 months of being on Esbriet® (pirfenidone), both my wife and I met with Barbara, a Clinical Education Manager (CEM) from Genentech.* Each meeting, we covered any issues I may be having while taking Esbriet, as well as dealing with IPF…we discussed our concerns and feelings about my diagnosis and living with IPF. She wasn't a doctor and didn't give me medical advice, but each time we came away feeling uplifted and encouraged about my journey. By our last meeting with Barbara, I felt confident that I knew what was going on and when to call my doctor if something comes up."

Socorro

Esbriet Ambassador
From:
 Bakersfield, CA
Job: Retired (Dept. of Human Services)

"When I found out my insurance was changing I was afraid that I wouldn't be able to continue taking Esbriet® {pirfenidone), but I really appreciated how everyone came together to help me stay on Esbriet. In my experience, I was able to work with my doctor and representatives from Genentech Access Solutions to find assistance options to help cover the cost of my Esbriet."

 

*CEMs are Genentech employees who educate about IPF and Esbriet® (pirfenidone). They do not provide medical advice. If you have questions about your health or treatment, you are encouraged to contact your healthcare provider.

 


Learn how Esbriet Ambassadors navigated treatment

Pete

Esbriet Ambassador
From: Chelsea, MI
Job: Flight Instructor

"Because Esbriet needs to be taken with food, I developed a system for when I eat so that I stick to my dosage protocol. I haven’t had problems with either my liver or my stomach. I’ve always had some sensitivity to the sun. I noticed it was somewhat worse once I started Esbriet. I made sure that I always had sunscreen, especially for my eyelids, and I tried to limit my time outside."

Rudy

Esbriet Ambassador
From: Somerset, NJ
Job: Professor of Italian Renaissance History

"I think it’s so important for me to stay on treatment as my doctor recommends. It's all about doing what I can to help slow the decline in my lung function for as long as possible."

Jim

Esbriet Ambassador
From: Sudbury, MA
Job: Retired (General Contractor)

"When I have questions about side effects, I call my doctor’s office. From the beginning, I got on a first-name basis with the nurse practitioner, and she helped me an awful lot. Communication with your healthcare team is very important, so never hesitate to contact them. I always let them know when I need help dealing with a problem."

 


Many of the Esbriet Ambassadors pictured together in early 2020

LEARN MORE ABOUT ESBRIET

Esbriet® (pirfenidone) capsules 267 mg

Find out how Esbriet works to manage IPF and ask your doctor if it may be an option for you.

BECOME AN ESBRIET AMBASSADOR

Become an Esbriet Ambassador

If you would like to share your story about living with or caring for someone with IPF as an Esbriet Ambassador, we want to hear from you. Contact us at 1-844-524-9033.

ADDITIONAL
IPF RESOURCES 

IPF foundations and support groups

Learn more about community support groups for people with IPF and their families, both in-person and online.