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TALKING TO YOUR DOCTOR ABOUT IPF

Take an active role in managing your IPF

It's important to learn as much as you can about idiopathic pulmonary fibrosis (IPF) so you can take proactive steps to manage your condition. Talking with your healthcare team can make all the difference. Your team can include your doctor, pulmonologist, and nurses who specialize in lung diseases. Tell your team about yourself. Express your resolve and determination to manage your condition.

Tips for productive doctor’s appointments


 
Doctor's appointment infographic

1. Preparing before your doctor’s appointment

  • Ask a family member or friend to come with you to the appointment
  • Ask your doctor if you can record the appointment, or if a staff member can write down key notes for you

2. Questions to ask your doctor about managing IPF

  • What can I do now to start managing my IPF?
  • Are there treatment options? What are they?
  • How does treatment for IPF fit in with my personal goals?
  • Can you tell me the possible benefits of IPF treatment?
  • Will there be side effects? If so, what can I do to manage them?
  • Is there anything I should consider to help manage my IPF, such as pulmonary rehab?
  • Will I need oxygen therapy?
  • Are there local support groups you can recommend?

3. Following up after the appointment

  • Schedule your next appointment before you leave your doctor’s office
  • Use the Tracking Your Journey journal to track your health between doctor’s visits and to keep you motivated and inspired during your IPF treatment
 

With IPF, once damage occurs, it cannot be undone. 
That’s why it is important to discuss if starting treatment may be right for you

Talk with your doctor to discuss ways to manage your IPF and to support a healthy lifestyle

 

Patient Ambassador Becki

You have to be your own health advocate—ask questions about your care, understand what you’re being told, ask about the side effects of medicines being prescribed. Investigate what you are told and possible alternatives in your treatment plan. Be an active participant in your own healthcare!”

Becki 
Esbriet Ambassador

Learn about financial assistance

LEARN MORE ABOUT ESBRIET

Find out how Esbriet may help, and additional questions to ask your doctor about Esbriet.

About Esbriet

Esbriet® (pirfenidone) is a prescription medicine used to treat people with a lung disease called idiopathic pulmonary fibrosis (IPF).

It is not known if Esbriet is safe and effective in children.

Before you take Esbriet, tell your doctor if you:
  • have other medical conditions (particularly liver or kidney problems).
  • are a smoker.
  • are or plan to become pregnant or breastfeed (Esbriet has not been studied in these patients).
  • are taking any prescription or over-the-counter medicines, vitamins, or herbal supplements.
What are the possible side effects of Esbriet?

Esbriet may cause serious side effects, including:

  • liver problems. Call your doctor if you have symptoms such as yellowing of your skin or eyes, dark or brown urine, pain on the upper right side of your stomach area, bleeding or bruising more easily than normal, or increased fatigue. Your doctor will also do regular blood tests to check your liver.
  • sun sensitivity and rash. When you are outside, use sunscreen (SPF 50) and wear a hat and clothes that cover your skin to avoid getting a sunburn.
  • stomach problems. Esbriet may cause stomach problems such as nausea, vomiting, diarrhea, indigestion, heartburn, and stomach pain.

Your doctor may change your dose or discontinue Esbriet if side effects do not go away.

The most common side effects of Esbriet include upper respiratory tract infections, feeling tired, headache, dizziness, loss of appetite, sinusitis, insomnia, or weight loss.

These are not all the possible side effects of Esbriet.

What should you avoid while taking Esbriet?
  • Direct exposure to sunlight, or light from sunlamps and tanning beds.
  • Other medicines that can make your skin sensitive to sunlight.
  • Smoking, which may affect how well Esbriet works.

Call your doctor for medical advice about side effects. You may report side effects to the FDA at 1-800-FDA-1088 or www.fda.gov/medwatch or to Genentech at 1-888-835-2555.

Please see full Prescribing Information, including Patient Information, for additional important safety information.

    • Centers for Medicare & Medicaid Services. Advance notice of methodological changes for calendar year (CY) 2018 for Medicare Advantage (MA) capitation rates, Part C and Part D payment policies and 2018 call letter. https://www.cms.gov/Medicare/Health-Plans/MedicareAdvtgSpecRateStats/Downloads/Advance2018.pdf. Posted February 1, 2017. Accessed October 17, 2017.

      Centers for Medicare & Medicaid Services. Advance notice of methodological changes for calendar year (CY) 2018 for Medicare Advantage (MA) capitation rates, Part C and Part D payment policies and 2018 call letter. https://www.cms.gov/Medicare/Health-Plans/MedicareAdvtgSpecRateStats/Downloads/Advance2018.pdf. Posted February 1, 2017. Accessed October 17, 2017.